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Timeline

Born 18th Jan 2012 - an event leads to a brain injury

2 weeks old - diagnosed with bilateral retinoblastoma

6 weeks old- begin 6 months of systemic chemotherapy (JOE chemo) and laser treatment to both eyes.

Aug 2012 - Systemic chemo ends. Hickman line removed and Gastro jejunal (GJ) feeding tube fitted

End of Aug - GJ tube comes out and gets reinserted.

Sept 2012 - laser treatment.

Oct 2012 - laser treatment.

Nov 2012 - laser treatment.

Jan 2012 - IAM- Inter Arterial Melphalan treatment (melphalan chemotherapy injected into artery to directly treat left eye tumours)

Feb 2013 - IAM Inter Arterial Melphalan, dose 2.

March 2013- laser treatment.

April 2013 - laser treatment.

May 2013 - GJ tube comes out and goes back in AGAIN

June 2013 - IAM  Inter arterial melphalan, dose 3.

July 2013 - laser treatment and IAM - Inter arterial melphalan, dose 4

 

 

My journey so far ....

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